Zoghbi attributes in part to his parents the fact that Henry lived longer than most boys with the disease. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo, he shared. He has this smile that he looks at you youll see it in the pictures posted on the web and naturally, you fall in love with him, she told "TODAY." "You were amazing warriors for Henry pouring your love and care into him and fighting for him every day with everything youve got. For an optimal experience visit our site on another browser. "For everyone following Henry's story, unfortunately he's taken a. Richard was first married to a fellow Stanford student and parted ways in 2005. When Zoghbi uncovered that Henry was the first person observed to have his particular mutation to the MECP2 gene, she needed to do more research, so she recommended Henry be seen at Texas Childrens Hospital, where doctors could treat and track his symptoms to see if they followed the usual path for Rett syndrome. Engel has shared updates on Henry over the years, writing essays in 2018 and 2019 about both the joys and heartbreaks the family experienced. Learning to take a few steps in his walker and communicating with cards and a computer.". ", "Egyptians Fear Decades of Muslim Brotherhood Rule, Warn Morsi is No Friend to US", "Richard Engel Draws Praise for Egypt Coverage", "Libya Media Swarm into Gaddafi Compound", "Richard Engel's Kidnapping: A Behind the Scenes Look", "NBC News Alters Account of Correspondent's Kidnapping in Syria", "Richard Engel, NBC Chief Foreign Correspondent, to Deliver 2013 Commencement Address", "The Undergraduate Journal of the Social Sciences Interview Series Richard Engel", "Addition to Winners' CRichard Engel to speak on Wednesday evening", "2013 New York Stock Exchange Closing Bell and Circle of Honor Dinner", "Columbia University Graduate School of Journalism Richard Engel, NBC News Chief Foreign Correspondent, Receives the 2013 John Chancellor Award", "PBS Dominates News & Documentary Emmys; CBS Leads Broadcast Nets", "Quinnipiac honors Richard Engel, late Bob Simon at annual Fred Friendly First Amendment Award Luncheon June 9", "2016 National Edward R. Murrow Award Winners", https://www.nypressclub.org/wp-content/uploads/2019/02/2017-jawards-winners-news-release.pdf, https://scripps.com/wp-content/uploads/2019/06/2019_ScrippsHowardAwardsProgram.pdf, "CBS News Wins 8 Edward R. Murrow Awards", "Sigma Delta Chi Awards - Society of Professional Journalists", "2020 TV / Radio | National Headliner Awards", "Reuters, VICE News, NBC win top awards in National Press Club journalism contest", "New York Press Club Announces its 2020 Journalism Award Winners the New York Press Club", "2021 National Edward R. Murrow Award winners", https://www.nypressclub.org/wp-content/uploads/2022/05/NYPC-2022-AWARDS.pdf, "The 2022 #deadlineawards winner for the National TV Spot News Reporting category is @RichardEngel @NBCNews "Taliban", "NBC's Richard Engel Marries 'Longtime Love' Mary Forrest", "Richard Engel Welcomes Son Henry Thomas", "NBC correspondent Richard Engel welcomes second son: 'We couldn't be more in love', "Richard Engel shares heartbreaking story of son's medical journey", "NBC News' Richard Engel says his 6-year-old son, Henry, has died", https://en.wikipedia.org/w/index.php?title=Richard_Engel&oldid=1152191389, U.S. troop surge, the influx of 30,000 troops in 2007, 2006, News & Documentary Emmy Award, Outstanding Coverage of a Breaking News Story in a Regularly Scheduled Newscast, 2007, Medill Medal for Courage in Journalism, 2008, Peabody Award, for his coverage of the Viper Company, a remote U.S. Army unit in Afghanistan, 2008, Alfred I. duPont-Columbia University Award, 2008, News & Documentary Emmy Award, Outstanding Continuing Coverage of a News Story in a Regularly Scheduled Newscast, 2008, News & Documentary Emmy Award, Outstanding Live Coverage of a Breaking News Story Long Form, 2008, News & Documentary Emmy Award, Best Story in a Regularly Scheduled Newscast, 2009, Society of Professional Journalism Award, 2009, News & Documentary Emmy Award, Outstanding Continuing Coverage of a News Story in a Regularly Scheduled Newscast, 2010, News & Documentary Emmy Award, Best Story in a Regularly Scheduled Newscast, 2010, News & Documentary Emmy Award, Outstanding News Discussion & Analysis, 2010, OPC David Kaplan Award for spot news reporting for a series of three reports from Afghanistan, 2011, David Bloom Award, Radio and Television Correspondents' Association, for Excellence in Enterprise Reporting, 2012, Alfred I. duPont-Columbia University Award, 2014, Peabody Award for his comprehensive look at the rise of ISIS, 2015, Outstanding Coverage of a Breaking News Story in a Regularly Scheduled Newscast, 2015, Outstanding Hard News Report in a Regularly Scheduled Newscast, 2015, Fred Friendly First Amendment Award, 2016, National Edward R. Murrow Award, NBC Nightly News with Lester Holt Newscast, November 19, 2015, "Terror in Paris" Correspondent - Richard Engel, 2017, New York Press Club, Feature Reporting, On Assignment with Richard Engel - "A Matter of Trust", 2019, Scripps Howard Award - National, International Coverage. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Richard Engel announced the heartbreaking news that his son Henry has died after a battle with Rett syndrome. He said in a candid essay for Today that Henry was "not doing very well" considering the circumstances. [citation needed], Engel worked as the Middle East correspondent for The World, a joint production of BBC World Service, Public Radio International (PRI) and WGBH from 200103. "Dear Henry, you will be missed. Engel and his wife, Mary Forrest, have been candid about their sons diagnosis. In fact, Dr. Hoda Zogby, who discovered the genetic cause of Rett Syndrome, believes Henry's cells hold the secrets to finding a cure. During this time he covered the war between Israel and Hezbollah in Lebanon. 13,572, This story has been shared 12,221 times. This is how we will honor his life. Rett syndrome is a rare neurological disorder that affects the way the brain develops, according to the Mayo Clinic. He must have recognized everybody was celebrating him and everybodys excited about it. We always surrounded him with love and he returned it, and so much more. Here's how. In March 2011, Engel was caught in an artillery strike while interviewing fighters during a rebel advancement towards former Libyan leader Muammar Gaddafi's forces outside the city of Ajdabiya. NBC News chief foreign correspondent Richard Engel has shared some sad news about the health of his 6-year-old son, Henry. Soon after sharing the first video, Engel tweeted another sweet photo of Henry sitting up and looking at the camera. [citation needed] He reported on the advances made by rebel fighters within the country as well as the mass defections from Syrian President Bashar al-Assad's government army. For the age expectancy of people living with Rett . [77][78] Henry Engel was born with Rett syndrome, a genetic disorder that is extremely rare in males; he died in August 2022 at age 6. Mutual Fund and ETF data provided by Refinitiv Lipper. "It was a long time coming, which made it all the sweeter an unexpected reward," he wrote. ", "We have a vendetta against the syndrome and we want to cure it," Forrest said about the disease. "A big thank you to everyone who sent kind and thoughtful messages, and donated to support medical research to defeat Rett . "Hes healthy, happy (unless you unwrap his swaddle) and thirsty. Engel opened up on the "Today" show in March with an emotional essay about his first son, Henry, finally saying "Dada" after being diagnosed with Rett Syndrome, a rare genetic neurological. Everything to Know About Bruce Willis' Diagnosis, One Year into Ukraine War, NBC's Richard Engel Shares Insights from the Ground: 'Still in the Early Phases', their late son, his disease and the new balcony dedicated to his memory. [2] Before joining NBC in May 2003, Engel reported on the start of the 2003 war in Iraq for ABC News as a freelance journalist in Baghdad. Richard Engel At the 2015 Peabody Awardsceremony Born (1973-09-16) September 16, 1973(age 49) New York City, U.S. Education Stanford University(BA) Occupation Television journalist Title Chief foreign correspondent for NBC News(2008-present) Spouse Mary Forrest (m. 2015) Children 2 (1 deceased) [51], Engel's account was however challenged from early on, with Jamie Dettmer of The Daily Beast citing unnamed sources, who believed Engel and his team had been kidnapped by rogue rebel groups opposed to Assad. [79][80], "About us: Richard Engel - NBC News Chief Foreign Correspondent", "Seven-Pakistani journalists honoured at Newseum memorial re-dedication", "In Iraq, Journalist Richard Engel Sticks to the Story", "High Achieving Dyslexics: Richard Engel", "High Achieving Dyslexics: Richard Engel, Journalist", "Richard Engel on Finding Success With Dyslexia", "Success Stories: Richard Engel, Chief Foreign Correspondent for NBC News", "Richard Engel, Chief Foreign Correspondent for NBC News", "Richard Engel: Covering War for a Decade", "Nominees for the 32nd Annual News & Documentary Emmy Awards Announced by the National Academy of Television Arts & Sciences", "Ukraine: Freedom or Death Putin Invades Ukraine", "Special Program: Journalists Memorial Rededication Ceremony", "Book Discussion on War Journal: My Five Years in Iraq", "Richard Engel Reports: Tip of the Spear", "Will Election Help Women in Afghanistan? The mutation causes Rett syndrome, "a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties," the hospital said. The NBC News chief foreign correspondent paid tribute to his son Henry, who died last month from a neurological disorder, on what would have been his 7th birthday. Happy Birthday Binks (our nickname).. [14] He graduated from Stanford in 1996 with a B.A. Richard Engel's son Henry dead at age 6 after battling neurological disorder By Francesca Bacardi August 18, 2022 | 11:34am Richard Engel announced the heartbreaking news that his son. On Monday, the NBC News chief foreign correspondent shared a sweet video of the moment his youngest son took his first steps. "Our beloved son Henry. Richard Engel has become an advocate for his son PeopleTV/YouTube Richard Engel and Mary Forrest's eldest son, Henry, suffers from a rare genetic condition called Rett syndrome, which. Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder. Our beloved son Henry passed away. And with a smile. We don't want any other child to lose their life. Powered and implemented by FactSet Digital Solutions. "Henry had no bad qualities. Were excited, nervous and thankful.". Fox says Parkinson's battle getting 'harder': 'I'm not gonna be 80', Padma Lakshmi claps back at trolls: 'I have boobs, I have nipples', Kendall Jenner rocks sheer top, fur mini skirt for date night with Bad Bunny, Miley Cyrus mom, Tish Cyrus, engaged to Prison Break star Dominic Purcell, Fans confused over Lala Kent, Ariana Madixs White House dinner appearance, Woman has 'loud and full body orgasm' during LA Philharmonic concert. This is how we will honor Henrys life, Zoghbi said at a recent event honoring Henry at the Duncan Neurological Research Institute at Texas Childrens Hospital in Houston, where she serves as director. Follow him on Twitter at @davidrutz. . "Henry was special in so many ways," Zoghbi wrote. He would shake a little bit, she recalled. While many media outlets pulled their journalists out of Iraq shortly after shelling began in March 2003, Engel stayed, and was subsequently one of the only Western journalists in the country. Privacy Notice The Engel family brought Henry to the hospital's Duncan Neurological Research Institute (Duncan NRI) in 2018 to seek additional answers. "But he will always be with us, even now he's hard at work to help other children whose lives are more difficult than they should be. He had the softest blue eyes, an easy smile and a contagious giggle. He will always be with us, even now hes hard at work to help other children whose lives are more difficult than they should be, the NBC News chief foreign correspondent said on TODAY. Currently, there isnt one, and treatment addresses symptoms of the syndrome, not its cause, according to NIH. If were successful, that can help so many patients. Engel linked to the memorial page in a follow-up post, writing, "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. Studying [Henrys] cells helped us to think a little differently, to find yet one more approach for developing therapies for Rett, she said. NBC News chief foreign correspondent Richard Engel announced Thursday that his son Henry, 6, has died. Fox News' Brian Flood contributed to this report. But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.. Market data provided by Factset. It means life long, permanent, untreatable physical and intellectual impairment, Engel said on TODAY in 2018. Get all the stories you need-to-know from the most powerful name in news delivered first thing every morning to your inbox. He was also unlucky, born with a rare genetic disease called Rett Syndrome.". It is more often found in girls and there is no cure. Do Not Sell My Personal Information, Click to share on Facebook (Opens in new window), Click to share on Twitter (Opens in new window), Click to email a link to a friend (Opens in new window). Over the years, Engel has shared regular updates on his son's condition with the TODAY team and has been candid about the struggles and the joys of parenting a child with special needs. [34][35] In 2008, Engel interviewed U.S. Army General David Petraeus on the progress of the Iraq War and discussed the policies the general attributed to the recent successes in Iraq. The NBC News chief foreign correspondent said his son, who has a rare genetic disorder, has "taken a turn for the worse. But research takes time, and Zoghbi said shes heartbroken that she and her team werent able to bring to the table something that could help Henry directly. Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease, Engel continued in a follow-up tweet, providing a link to Texas Childrens Hospital, which is fundraising for the cause. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo.. 3 min read. The TODAY regular shared a link to a memorial page on the Texas Children's Hospital website, which offered more details on Henry's life and his battle with Rett syndrome, a genetic brain disorder without a treatment or cure. We always surrounded him with love and he returned it, and so much more. 2023 FOX News Network, LLC. In June, Engel said Henry had taken a turn for the worse, developing dystonia, characterized by shaking and stiffness. And neither did Henry. "A single devastating typo in his genetic code robbed him of the ability to walk, talk and control his body. Georgia Slater is a writer/reporter on the Parents team at PEOPLE. In a tweet posted on Aug. 18 . Henry Engel is the first of the 2 children of journalists Richard Engel and Mary Forrest The years old was . NBC News Richard Engels son Henry has died from disorder. Your heart goes out, and you want to do everything possible.. Richard Engel paid tribute to his late son, Henry, who would have turned 7 years old on Thursday. His muscles are moving. "He was in the hospital for 6 weeks, but is now home and getting love from brother Theo. Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Richard Engel's Wife Mary Pens Essay About 6-Year-Old Son Henry's Death: 'One Last Goodbye', Richard Gere's 3 Children: Everything to Know, Recovering from Multiple Seizures and Autoimmune Encephalitis, Texas Boy Hopes to Go to 2nd Grade in Person, How This Mother Went to Extremes to Help Her Mentally Ill Son: 'He Knows He's Locked up Because of Mom', NFL Sportscaster and Former Player Irv Cross Had Stage 4 CTE, New Findings Show, Colin Farrell's 2 Sons: Everything to Know, How Bruce Willis' Family Is Helping Him 'Live as Full a Life as Possible' After Dementia Diagnosis, Emily Maynard Johnson Shares Sweet Photos of Baby Jones Wearing New Personalized Cranial Helmet, revealing that "school was the only place where. To support the research: https://t.co/M8LV8SHv6r pic.twitter.com/UNnDONMtR1. The news of Henrys passing came just months after Engel revealed his sons health had taken a turn for the worse., For everyone following Henrys story, unfortunately, hes taken a turn for the worse, the NBC News correspondenttweeted back in June. [44][45], Engel reported on the revolution in Libya from the front lines, spending months traveling from rebel commanded areas in Benghazi to other rebel strongholds. This story has been shared 13,615 times. [28] Engel covered all major milestones of the war, including the first free Iraqi election and the capture, trial, and execution of Saddam Hussein. . [42], Engel reported extensively on the Arab Spring movement. We always surrounded him with love and he returned it, and so much more," Engel wrote alongside a sweet photo of his son. Engel grew up on the Upper East Side of Manhattan, New York City. On his tribute page, Henry is described as someone who "made the best of every single day and worked tirelessly in his many physical and developmental therapies.". And now Henry is a big brother, too.". The NBC News chief foreign corespondent, who has spent much of his career covering warand political upheaval,announced in an email to the"Today" showthat he and his wife, Mary Forrest, welcomed their second child, Theodore Forrest Engel, over the weekend. This material may not be published, broadcast, rewritten, Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder. Richard Engel is trying to find the good on a very sad day. Taylor Swift's Atlanta ticket prices are dropping big time. You hold a baby like Theo and hes wriggling, he told People in 2019. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo," he wrote on Twitter at the time. Engel spent one summer as an unpaid intern at CNN Business News in New York City. RELATED: Doctor of Richard Engels late son Henry reflects on time with him: He has this smile. In her free time, she enjoys traveling, watching bad reality TV and consuming copious amounts of cookiedough. It also caused numerous underlying health conditions including impacting his breathing," he continued. Born in September 2015 . "Our beloved son Henry passed away. Richard Engel announced on social media that his 6-year-old son Henry Engel has died after an aggressive battle with Rett syndrome, a rare brain disorder. We always surrounded him with love and he returned it, and so much more. While many other children suffer from Rett Syndrome, Henry had a specific genetic mutation never seen before.